The Live Like Madison Foundation, Isabella Santos Foundation and Move For Jenn Foundation have joined forces to honor Madison Fedak who lost her life to osteosarcoma at the age of 7 on Dec. 21, 2019. All three organizations are teaming up to fund a $250,000 childhood cancer clinical trial out of Nationwide Children’s in Ohio focused on creating a new way of treating kids fighting relapsed sarcomas.
We are kicking off 2021 by writing our LARGEST check yet for $25,000 to help support sarcoma cancer research (Nationwide Children's clinical TINKS Trial) with two other incredible nonprofits. Thank you for helping one of our dreams come true. We get to be a small piece of helping to find a cure. If you have made a donation, attended an event, purchased a shirt, shared a post, thank you.
When I was first diagnosed the doctors thought it was either melanoma or clear cell sarcoma. After additional testing the results confirmed that I had clear cell sarcoma. But I am getting ahead of myself, this is how my sarcoma story started.
I was diagnosed in June 2014, but it all started that April. I woke up with a sore chest and midline after a rigorous personal training session the night before. Looking back the only pre-symptom I had was a sharp unusual pain when I sneezed or coughed. I went to my general practitioner who sent me to get an abdominal ultrasound.
If you are reading this, sarcoma has impacted your life in some capacity. I wish it were under different circumstances, but through this twist of fate we are all connected. So, I’m going to be as transparently honest as possible with you all, because if this experience taught me anything, it’s how to be vulnerable. I’ll start by telling you a bit about my mom.
West Elm Greensboro and Jodie Brim Photography partnered together to throw a memorable "Brunch and Bubbly" event to honor local women and their achievements. All of the proceeds, ticket sales and raffle funding raised was donated to the Move for Jenn Foundation.
Sarcomas are a rare form of cancer estimated to be about 1% of all cancers according to recent publications from the Sarcoma Awareness Foundation. There are many sub-types of this type of cancer because they can arise from a variety of different tissue structures within the body. According to the Sarcoma Awareness Foundation, the majority of sarcomas are found in the limbs of the body where there are high concentrations of connective tissue.
Cancer. The word stops you dead in your tracks. For Jenn Andrews, the word ignited a flame to create a foundation to ensure that fellow sarcoma patients would not find themselves isolated and alone. The Move For Jenn Foundation helps this rare subgroup of cancer patients get access to necessary medical equipment to ensure that they keep moving forward.
The Move For Jenn Foundation ends 2019 on a high note by issuing a grant to their first pediatric cancer survivor, 15-year old Harleigh Spartman. "I knew I would never be able to afford it for her," Angela [Harleigh's mother] said. "And I'm just so happy. That's the only thing she hasn't been able to conquer-- is running. And she wants to run so bad."
Since Jenn lost her right foot and lower leg to sarcoma 21 months ago, she has been an idol in the cancer community, representing amputee fitness and sarcoma survivors worldwide. As an amputee woman, her goal is to encourage other amputees and give them hope that despite the hardship of losing a limb, they can recover, move on successfully, and resume life with the help of prosthetic solutions.